Friday, August 24, 2007


a·nom·a·ly /əˈnɒməli/ [uh-nom-uh-lee] –noun, plural -lies. 1. a deviation from the common rule, type, arrangement, or form.
2. someone or something anomalous: With his quiet nature, he was an anomaly in his exuberant family.
3. an odd, peculiar, or strange condition, situation, quality, etc.
4. an incongruity or inconsistency.
5.Grammar. irregularity.

[Origin: 1565–75; <>
—Synonyms 1, 2. abnormality, exception, peculiarity.

Okay, so Wednesday Sarah had her appointments at Cooks Childrens Hospital. EEG at 8:30am and MRI at 10:30 am... The EEG required that she be sleep deprived, so she was up until 1:00am and the I had to wake her at 4:30 am (I actually woke her at 5:46). The EEG consists of attaching a bunch of little wires to Sarah's head, then monitoring her as she drifts off to sleep. Once asleep, she's immediately waken. Sarah did very well considering..wasn't too keen on being woken a second time. Once finished there, time to cross the street to CCH for her MRI.. The MRI consisted of her not eating any solids after midnight and absolutely nothing after 9:30am... (did I mention she was sleep deprived?) at 10:30 we checked in at administration, did not go well. This particular area is tile, glass block divider walls, walls of mirror, big glass windows..lots of echoing. In addition to this, Sarah needs to potty, big sterile echoy bathrooms..continuing decline in behavor..into pre-op waiting room, MELTDOWN commences! Scaring the living daylights out of other small children..quickly moved to pre-op room. Sarah does 180 and sweet as pie. Time to administer sedative, must tape heart/pulse monitor to finger via tape..noooooo kicking and screaming but within 15 minutes out like a light. (Mommy request more to take home..) Mom is escorted to waiting room to wait 1 hour and 15 minutes...Mom is called to recovery and there is poor Sarah, kicking, screaming, scratching, biting, spitting, yelling, everyingthing I anticipated. Took five of us to hold her down and to prevent her from ripping her IV out. 4o minutes later, after finally draining her IV bag (must be hydrated to leave) we are wheeled to the van. *sigh* Our morning started around 5:30ish and ended at 2:30pm. We're pooped.
Friday, phone rings and it's the Dr.'s Nurse Practitioner, test results are back and it's time to share.....Sarah's EEG showed anomolies consistant with children with seizures, EVEN THOUGH, she herself has experienced just one. The likiehood of Sarah having another seizure has increased. But the Dr. would like to do more tests before prescribing anything.
The MRI also showed anomolies and something that our NP admitted she herself is not qualified to answer. But again, more testing will be required. However, nothing indicated that Sarah is in any immediate danger. So, on October 11th we'll be visiting our neurologist to view the findings first hand, and plan our strategy for Sarah.... So for now, Sarah is okay, Mom is emotionally tapped out and mentally fatigued. David is now working on having Sarah listed as an "exceptional child", which means the military will find David new orders closer to home because of Sarah's special "medical condition" and possible needs. So until we learn more, we're still sorta where we began...


Jenn said...

Hang in there. You are doing a great job. I'm glad you found this doctor. Big Hugs.

Stephanie said...

Well, *humph*, *sigh*, at least there is a direction to follow now.
You all are in my prayers. hang in there and don't forget you have friends to lean on and unload on.

Becky B. said...

I just want to run over and hug you. (I'm almost sure that it would not help). I am glad there is progress. At least there is somthing happening on the road to "figuring out Sara". See you soon.

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